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Kentucky Disability Resource Guide

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Advocacy Organizations

National Association of the Deaf

Description:
KAD is organized by and for the deaf community and is an affiliated member of the National Association of the Deaf (NAD). KAD's mission is for mutual assistance and encouragement of deaf people and to secure moral, intellectual and social improvement of their educational and vocational opportunities. The KY Association for the Deaf has been working closely with the KY Commission for the Deaf and Hard of Hearing, the KY School for the Deaf Alumni Association and the KY Registry of Interpreters for the Deaf. Videophone: 301‍-587‍-1788 (ZVRS) 301‍-328‍-1443 (Sorenson) 301‍-338‍-6380 (Convo) 301‍-453‍-2390 (Purple) TTY: 301‍-587‍-1789
Resource URL:

National Center for Prenatal and Postnatal Down Syndrome Resources

Description:
The National Center for Prenatal and Postnatal Down Syndrome Resources, administered through HDI was created to insure that all parents and prospective parents receive accurate, balanced, and scientifically up-to-date information at the point of a prenatal or postnatal Down syndrome diagnosis.

National Down Syndrome Congress (NDSC)

Description:
The NDSC provides up-to-date information on topics of interest to people with Down syndrome, family members, friends, professionals and interested others. The Center works to promote the availability of and accessibility to a full range of opportunities and/or resources that meet individual and family needs.
Phone Number:
(800) 232-6372
Contact Email:

National Down Syndrome Society (NDSS)

Description:
The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.
Phone Number:
(800) 221-4602
Contact Email:

Preadmission Screen and Resident Review (PASRR)

Description:
Preadmission Screening and Resident Review (PASRR) is a federal requirement to help ensure that individuals are not inappropriately placed in nursing homes for long term care. The Department for Behavioral Health, Developmental and Intellectual Disabilities mandates a preadmission screening and resident review (PASRR) for all persons applying for admission to or residing in a nursing facility. PASRR is an important tool for states to use in rebalancing services away from institutions and towards supporting people in their homes, and to comply with the Supreme Court decision, Olmstead vs L.C. (1999), which held that that all individuals have the right to live in the “least restrictive setting” possible. PASRR can also advance person-centered care planning by assuring that psychological, psychiatric, and functional needs are considered along with personal goals and preferences in planning long term care.
Phone Number:
(502) 564-4527

Project SAFE’s Responding to Crime Victims with Disabilities: A KY Resource Guide

Description:
The Project SAFE (Safety and Accessibility for Everyone) Network is a multi-disciplinary collaboration of professionals working together to end domestic and sexual violence against individuals with disabilities. Individuals with disabilities are at greater risk of being sexually assaulted or sexually abused. Studies indicate that people with disabilities are especially vulnerable to different forms of violence and face unique barriers to receiving needed help.

Safe Kids KY

Description:
Safe Kids KY is part of the global organization dedicated to preventing injuries in children resulting from motor vehicles, sports, drowning, falls, burns, poisonings, and more. Children with disabilities have a higher risk of unintentional and intentional injuries and this organization is willing to do in services to local, area or state organizations on how to prevent injuries and the loss of a child. Based on the needs of the community, this coalition implements evidence-based programs, such as car-seat checkups, safety workshops and sports clinics, that help parents and caregivers prevent childhood injuries.
Phone Number:
(859) 323-6194
Contact Email:

Spina Bifida Association of Kentucky (SBAK)

Description:
SBAK is a resource center that provides free services and programs to children and adults with Spina Bifida and their families. SBAK’s mission is to promote the prevention of Spina Bifida and to enhance the lives of all affected.
Phone Number:
(502) 637-7363
Contact Email:

TASH Disability Advocacy Worldwide

Description:
TASH is an international leader in disability advocacy striving for fully inclusive schools, workplaces, and communities. TASH advocates for human rights and inclusion for people with significant disabilities and support needs ΓÇô those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and resources for parents, families and self-advocates. TASH ensures that all individuals have the opportunity to learn, work, and enjoy life amongst a diverse community of family, friends, and colleagues.
Phone Number:
(202) 540-9020
Contact Email:

TASH, Kentucky Chapter

Description:
KY-TASH supports the inclusion and full participation of children and adults with disabilities in all aspects of their communities as determined by personalized visions of quality of life.